← Return to Pheochromocytoma: Anyone being treated for an adrenal mass?

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Profile picture for charmay31 @charmay31

I had one on each of my adrenal glands. (at separate times) I had zero labs that can back abnormal, luckily, I watched my sister go through these symptoms and knew what to look for. We have MEN 2A. My 24 hour urine came back normal as well. The first one they removed my adrenal I had two tumors and then years later they took my other adrenal and same thing, had all the symptoms of a pheo but all labs and urine normal. They still removed the other one listening to me and again multiple tumors. LISTEN to your body!

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Replies to "I had one on each of my adrenal glands. (at separate times) I had zero labs..."

@charmay31, I'm sorry to hear that both you and your sister were diagnosed with MEN2A (multiple endocrine neoplasia type 2A). Thank goodness you listened to your body and were working with a cancer team that listened to you.

Did your family have further genetic testing? How are you doing now?