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Small Fiber Neuropathy: What helps?

Neuropathy | Last Active: 6 days ago | Replies (284)

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@poppsy1

Hi Everyon 1m a newby. Really hoping that someone may have similer symptoms to myself in that they could give me some advice First of all my condition is very complicated, I've never had a firm diagnoses even though it has been going on for three years, Neuropathy was mentioned but which one . Cut a very long story short approx 3 yrs ago I suffered with lower back pains, left side only of which became increasingly worse over time. Paid for an MRI and the outcome was I have couple of discs slightly pinching on the nerve. Was told not a big problem that injection in base of spine should help, after two separate injections i new it was not helping in fact pains became a lot worse. As time went by the whole left side became unbareble. I tried to keep active but i just couldn't carry on with the walking aside of that my body started to suffer from other symptoms, majority left hand side of the body but some migrating to the right, from head to toe literally, nerve and tissue pains every where, including private parts. ( Excrutiating and Constant ) I've been around and the world and back again with seeing GPS etc some of which I paid for. I am now housebound trying to cope with most hellish pains. I've had to chase the pain clinic as they let me down yesterday regarding phone call appt. So damned frustrating whivh reverts me to tears when I cant get hold of anyone to explain the urgency of my case. I meant to say I was a very active woman with happy disposition. That's been taken away purely because the medical profession would not listen from the start. Sorry for the rant and lengthy explanation.

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Replies to "Hi Everyon 1m a newby. Really hoping that someone may have similer symptoms to myself in..."

Hi @poppsy1, Thanks for sharing a little more on your symptoms. There is another discussion that sounds similar to your symptoms where you can meet other members and learn what they have shared. You mentioned the MRI showed you have a couple of discs slightly pinching on the nerve. @jenniferhunter maybe able to share some suggestions on questions to ask your doctor or other suggestions.

MRI results show bulging discs: what are my options?: https://connect.mayoclinic.org/discussion/mri-results/

Have you thought about seeking a second opinion at a teaching hospital or a major medical facility?