Hello @aruhela2021 - I would like to add my welcome to Connect along with @steeldove and other members. I did a search of Connect and was not able to find a discussion for neuromytonia (Isaac syndrome) but did find information on treatments on the NIH Genetics and Rare Diseases Information Center.

- Isaacs' syndrome: https://rarediseases.info.nih.gov/diseases/6793/isaacs-syndrome

You mentioned the IVIG treatment is initiated 6 years into your illness. Are they starting any other treatments prior to an IVIG?

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