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Small Fiber Neuropathy: What helps?

Neuropathy | Last Active: Jul 25 8:22am | Replies (285)
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Profile picture for aruhela2021 @aruhela2021

Thanks for your reply.
Yes I have been checked for that through nerve conduction study. The condition I have is called neuromyotonia and it explains all my symptoms and clinical course. I just want to know what are my odds of responding to IVIG and hear someone’s experience ,as the treatment will be initiated 6 years into my illness.

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Replies to "Thanks for your reply. Yes I have been checked for that through nerve conduction study. The..."
John, Volunteer Mentor | @johnbishop | Mar 5, 2021

Hello @aruhela2021 - I would like to add my welcome to Connect along with @steeldove and other members. I did a search of Connect and was not able to find a discussion for neuromytonia (Isaac syndrome) but did find information on treatments on the NIH Genetics and Rare Diseases Information Center.

- Isaacs' syndrome: https://rarediseases.info.nih.gov/diseases/6793/isaacs-syndrome

You mentioned the IVIG treatment is initiated 6 years into your illness. Are they starting any other treatments prior to an IVIG?

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