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Small Fiber Neuropathy: What helps?

Neuropathy | Last Active: May 17 2:03pm | Replies (284)
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@aruhela2021

Hello everyone. I was recently diagnosed with small
Fiber neuropathy in thigh and calf( has skin biopsy) with autoimmune etiology - antibodies to voltage gated potassium channel. Cancer has been ruled out . I have been dealing with right thigh pain , spasms stiffness cramps and burning pain since 6 years now ,finally got diagnosed.
Since last week I have also have developed same symptoms in the right calf as well. Can’t walk without a limp now, it’s so painful. I am currently
On carbamazepine 200 mg twice a day(it did help with my thigh stiffness to certain extent) I am being planned for IVIG waiting for insurance approval . Has anyone received such diagnosis and had any good response to IVIG?
Thank you in advance
Wishing all of you good health

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Replies to "Hello everyone. I was recently diagnosed with small Fiber neuropathy in thigh and calf( has skin..."
steeldove | @steeldove | Mar 5, 2021

@arulhearuhela2021 Have you been checked for meralgia paresthetica which causes pain in the thighs?

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helennicola | @helennicola | Mar 5, 2021

Hi Aruhela2021, you may want to check out the TS-HDS FGFR3 or the Neuropathy forums on Facebook which you have to ask to join. There are many who have had, are having or are waiting to have IVIG therapy, their info may be beneficial, most seem to have improved their pain and/or controlled the progression, good luck whatever you decide. Helen

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