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Lymphedema - new support group: Let's connect
Lymphedema | Last Active: Dec 3 9:38am | Replies (90)Comment receiving replies
I’m a teenager who’s been diagnosed with primary lymphedema. I’ve struggled with it for 3 years now. I’ve done so many things to try and help with it. I’ve worn compression socks, compression pump, physical therapy, even wrapping it. But I also have secondary lymphedema in my other leg. I got it from a fracture. I’ve struggled daily with it. My mom found something that may help though. We are going to a doctor to see if I can take the medication. Out of the 3 years I’ve never had this much hope. The medication is Wegovy. Has anyone tried it??
Replies to "I’m a teenager who’s been diagnosed with primary lymphedema. I’ve struggled with it for 3 years..."
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Welcome @lstei67, Sorry to hear you are struggling with lymphedema at such a young age. I've been battling with it for about 7 years but I'm a really old guy at 82. Compression socks do a pretty good job for me during the day and I elevate the foot of my bed at night when sleeping which also helps some using a folded up blanket under the mattress. I thought you might want to share this Mayo Clinic article with your mom for more information on the medication.
-- Health benefits of semaglutide — Beyond weight loss
https://mcpress.mayoclinic.org/living-well/health-benefits-of-semaglutide-beyond-weight-loss/
There are quite a few members using Wegovy (semaglutide) for other conditions but I haven't seen one using it for lymphedema. Also not sure it is approved treatment for lymphedema but hope it will be an option for you if the doctor approves. Here's a search of Connect for members experiences with Wegovy for other conditions and weight loss if you want to scan through the discussions and comments - https://connect.mayoclinic.org/search/.
When do you meet with your doctor?