Connect
← Return to Small Fiber Neuropathy: What helps?
Discussion
Small Fiber Neuropathy: What helps?
Neuropathy | Last Active: May 17 2:03pm | Replies (284)Comment receiving replies
My pain is everything from burning to sharp lightning bolts to pins and needles to aching. my feet are around 75% numb and the numbness runs up the outside of each leg to my knee. My pain is always and it sucks. Thanks for your kind words and it is GREAT to know that i am not alone ( not that i want anyone else to have ISFN)
Replies to "My pain is everything from burning to sharp lightning bolts to pins and needles to aching...."
@lisalucier i take an opioide and Lyrica, which the combo of the two give me some relief, its not 100% but at least i can live life. i have tried some pain creams which also helped but for only 30 minutes or so. i just really wish my Doctors or anyone can tell me why i have this, it is so frustrating that they cant and that there is no cure.
Connect
Oh boy, yes. What you have described is what I feel mostly in both hands and both forearms. I also have it in the same areas as you, but my hands and forearms are the worst with the SFN.
You definitely are not alone. And, yes, I wouldn't want anyone else to suffer with SFN.
Were you diagnosed via punch biopsies? Do you see a Neurologist? What are you doing for your pain? At first, topical ointments and lidoderm patches helped, in addition to Gabapentin. (I am so thankful Gabapentin agrees with me - I can't imagine life without it. It helps to take the edge off).