Connect
← Return to Pancreatic Cancer Group: Introduce yourself and connect with others
Discussion
Pancreatic Cancer Group: Introduce yourself and connect with others
Pancreatic Cancer | Last Active: 21 hours ago | Replies (2017)Comment receiving replies
@azsunshine7 I asked him if it would be the distal (since it’s in the body) and he said, “At the minimal”. I asked if it was the Whipple and he said no. I suspect he means the entire pancreas (and its neighbor parts) since it is in the celiac axis and a couple of arteries.
For now, I’m wondering about the Folfirinox regiment. Does everyone take a temp pump home for a day? Does everyone have to go back day 3 to have temp removed?
Replies to "@azsunshine7 I asked him if it would be the distal (since it’s in the body) and..."
@pcjourney25
I brought the 5FU pump home, and let me tell you, it was a bit of a hassle. I couldn’t take a shower or a bath while it was connected, and sleeping with the pump attached was tricky—definitely not the most comfortable experience.
But you know what? I got used to it. Just reminds me that this too shall pass. 💖
Connect
@pcjourney25 Hi and welcome to Mayo Connect. Here is a link on how others experienced folfirinox.
https://connect.mayoclinic.org/discussion/began-folfirinox-treatment-have-a-few-questions/
As you will read, the experience can be quite different for everyone. For me, learning from other patients has been invaluable in dealing with the physical, mental, and emotional challenges of having pancreatic cancer. How was your cancer found? Were you having any symptoms?