Hi @bethb94, I think a lot of us have been where you are and I'm glad to see you are being proactive and learning as much as you can about your health condition. It can be unsettling to not have a diagnosis but don't give up. The National Institutes of Health page has some good information on diagnosis and treatment here:

NIH - Diagnosis and Treatment of Pain in Small Fiber Neuropathy
-- https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3086960/

I’m not sure if it is an option for you but if it is, the Mayo Clinic is very good at diagnosing health issues that are difficult to diagnose. If you would like to seek help from Mayo Clinic, you can contact one of their appointment offices. The contact information for Minnesota, Arizona and Florida can be found here:

Mayo Clinic Contact Information: http://mayocl.in/1mtmR63.

Did your doctors schedule any more tests for you or an appointment with a neurologist or other specialist?

John