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Small Fiber Neuropathy: What helps?

Neuropathy | Last Active: May 17 2:03pm | Replies (284)

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@bethb94

I have no diagnosis yet but it seems clear to me that I have some form of neuropathy. 18 months ago I woke up one morning and had some facial numbness and had numbness and tingling pretty much all over. I thought I slept the wrong way on my neck or something. Had a brain and cervical MRI to rule out MS. Since then the numbness and tingling progressed into intense burning in my feet and my pins and needles over the rest of my body and now pins/needles, muscle cramping and twitching. The pain is the worst in my feet and hands. The twitching drives me crazy and it all is making me nervous about what is going on. I've had all the autoimmune tests and today I had an EMG and conduction test which was only slightly abnormal but not enough to give me a diagnosis. I've read a lot about SFN and I guess that's what if could be? I'm guessing I would have to have a skin biopsy? I would like to know if anyone with SFN has muscle cramps, weakness and twitching. I thought that was mainly from large fiber or motor neuropathy? I hate this! I know the doctors are starting to think I'm just crazy. I would appreciate any input. Thank you!

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Replies to "I have no diagnosis yet but it seems clear to me that I have some form..."

Hi @bethb94, I think a lot of us have been where you are and I'm glad to see you are being proactive and learning as much as you can about your health condition. It can be unsettling to not have a diagnosis but don't give up. The National Institutes of Health page has some good information on diagnosis and treatment here:

NIH - Diagnosis and Treatment of Pain in Small Fiber Neuropathy
-- https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3086960/

I’m not sure if it is an option for you but if it is, the Mayo Clinic is very good at diagnosing health issues that are difficult to diagnose. If you would like to seek help from Mayo Clinic, you can contact one of their appointment offices. The contact information for Minnesota, Arizona and Florida can be found here:

Mayo Clinic Contact Information: http://mayocl.in/1mtmR63.

Did your doctors schedule any more tests for you or an appointment with a neurologist or other specialist?

John