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Small Fiber Neuropathy: What helps?

Neuropathy | Last Active: May 17 2:03pm | Replies (284)

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@johnbishop

Post by @artscaping to @aliceccentric (lost when we moved @aliceccentric's post here)

@aliceccentric, welcome to our very involved and committed group of folks dedicated to finding treatments that help and then sharing them with others who suffer from a similar condition. I received my diagnosis of idiopathic small fiber neuropathy 2 years ago. Unlike @johnbishop, my slice of the pie also arrived with pain. So the steps for me in rank order are numbness, tingling, and then needle-like pain. With the growing intensity of my symptoms over time, the numbness became a more urgent issue as my stability declined and I was on the verge of giving up driving because I couldn't feel my feet. The solution arrived in an unexpected way….myofascial release therapy conducted by an expert level MFR therapist. I now see her one a week and some of our time together is spent bringing feeling back to my hands and feet. It is great to walk across a carpeted floor and actually feel the loops of the fiber. It is rewarding to know that my foot is actually on the brake in the car. My feet are not as tight and the feeling of restriction is considerably alleviated. The benefit of the treatments can last up to 2 weeks. Might be worth a try.

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Replies to "Post by @artscaping to @aliceccentric (lost when we moved @aliceccentric's post here) @aliceccentric, welcome to our..."

Thanks Chris @artscaping - I copied and pasted your post here. I still haven't looked into the MFR treatment but once I get me knee back to somewhat normal I'm thinking about looking into it.

Has anyone here thought they have fibromyalgia. ?or muscle skeletal issues. It’s so confusing. The all over body pain. I go for soft tissue massage. My body hurts horribly afterwards. Every inch bones muscles tendons skin. Same with swim therapy So I had the punch biopsy last week to see if it’s neurapathy.
Test results 2 weeks.
I just constantly hurt all over head to toe. It’s like having the flu but you don’t.
Anyway I just saw the test for Fibromyalgia. FM/a suppose to be a definite way to diagnose fibromyalgia.