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Profile picture for azsunshine7 @azsunshine7

Hello !

Does anyone have updates on the clinical trials they used?

I’m going to look into one to participate in now that my chemo is done.

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Replies to "Hello ! Does anyone have updates on the clinical trials they used? I’m going to look..."

@azsunshine7

I am going to a top medical institution tomorrow to discuss available clinical trials. Unfortunately each institution has its own trials and information is not shared. As such you must seek out trials hospital by hospital. I have found the information on Clinicaltrials.gov to be inaccurate, incomplete, and outdated. Hard to believe but true. What specifically is your diagnosis and where are you in terms of treatment? I have spent many 100's of hours researching clinical trials and contacted 20 or more hospitals. I have become very knowledgeable as a lay person whose is dealing with a spouse who is stage 4 pancreatic adenocarcinoma. Hopefully, I can guide you to the best of my ability as an informed caregiver. I am not a doctor however.