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Endometrial cancer at a late age
Gynecologic Cancers | Last Active: Dec 3 7:06pm | Replies (67)Comment receiving replies
@alohman08 hi, 69 yr old flight attendant here, diagnosed with endometrial carcinosarcoma in early September this year after excessive bleeding. Stage 1A, had hysterectomy at Dana Farber in Boston. I recently moved to Jacksonville to continue treatment at Mayo and be near family. I had 2nd of 6 chemo (carbotaxol) and am doing well. The Radiologist gave me the choice of brachytherapy or radiation post chemo, but stated that only radiation beam addresses the lymph nodes whereas BT only addressed the actually area around where the former tumor was so I chose the beam radiation. So this is all still new and shocking, hard to constantly hear and read “because of your very aggressive type of cancer” with this diagnosis but encouraging to hear about 12 year+ survivors…so let’s plan on that route! If you’d like to text privately I’m all in!
Replies to "@alohman08 hi, 69 yr old flight attendant here, diagnosed with endometrial carcinosarcoma in early September this..."
@marlenephagen hi...I'm sorry that you are dealing with this cancer, but it sounds like you are in good hands. I don't think our cancers are the same...mine is a serous carcinoma not a sarcoma...not sure what the difference is ?? My doctor did not recommend chemo or external radiation after my hysterectomy as I was told that there was no spread to any lymph nodes and the cancer was a tiny spec on the uterine wall. I had 3 treatments of brachytherapy and that was all. When the cancer recurred 18 months later, I had 6 rounds of chemo...which I tolerated well. I would love to chat privately but don't know how to do that ??
@marlenephagen I would like to add my welcome to Mayo Clinic Connect's Gynecological Cancers Support Group. I was 67-years-old when I was diagnosed with endometrial cancer. That was 6 years ago. In my case the cancer was endometrioid adenocarcinoma, FIGO Grade 1, Stage 1a and so a less aggressive cancer. When I first heard the word "cancer" from the gynecologist who did the D&C and gave me the results I was so stunned that I got lost while driving home on a very familiar route.
In your place I would be very tired of hearing "because of your very aggressive type of cancer". I suppose the medical providers continue saying this aloud to let you know why they are making the recommendations? Still it is very encouraging to hear about survivors more than 10 years out from their original diagnosis.
Here is what I can share. I return to Mayo Clinic in Rochester, MN for cancer surveillance appointments as recommended. I had recurrence two years after the original diagnosis and the recurrence was found during one of my appointments at Mayo Clinic. I moved to Rochester for 6 weeks for radiation therapy (external beam and brachytherapy). Chemotherapy was not recommended and I have not had chemotherapy.
My next appointments will be December 8-9 (next week). The more years that go by (four years since the recurrence) the more I can move the word "cancer" and worry from the front of my face blocking the best parts of my to the rear view mirror. I carry the worry with me and I never forget about it. But the worry is not omnipresent.
Yes, let's plan on more years with you traveling the world as a flight attendant and me as a passenger on the flight.
When do you start the radiation therapy?
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@marlenephagen, welcome. I appreciate your offer to text privately and share your contact information. We recommend not sharing your personal email on a public forum, but rather to do so using the secure private messaging. You will be able to send private messages in a few days. However, I would like to point out that by sharing on the forum, your messages benefit many and we can all learn from each other.
Marlene, have you started radiation treatments? How are you doing?