1. < Inflammatory Bowel Disease (IBD)
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Anybody diagnosed with microscopic colitis?

Posted by bobthebuilder54 @bobthebuilder54, Oct 12, 2011

Hi, wondering if anybody here has this for a dx. I have been having a flare for about two months, it is getting a little better with the meds but the doctor wants me to go on a short dose of steriods. I already have a muscle disease so hate to go the steriod route, (plus do not need to gain weight) lol. But if anyone has any hints for me I would appreciate it on how to control this. It is the longest flare I have had.
Susie

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pb50 | @pb50 | Nov 30, 2025
In reply to @volleyballfan "I have recently been diagnosed with Microscopic inflammation of the colon on top of EPI. Doctors..." + (show)
Profile picture for volleyballfan @volleyballfan

I have recently been diagnosed with Microscopic inflammation of the colon on top of EPI. Doctors are not convinced I have EPI after a year being on Creon.
I have been put in a steroid, Budesonide 3 mg, for two months. Haven’t started taking it yet. Has anyone been on this snd what are the dude effects? Have been told to continue taking Creon.

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@volleyballfan Get the Budesonide and thank the stars it exists. I had no side effects except confidence within a week that I could be more than 10 feet from my bathroom after 7 months of hell.
I had success after Budesonide but sadly relapsed a few months later and had to do another round - again successful but again relapsed. I am now on 3mg a day as maintenance. And I still thank the stars.

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volleyballfan | @volleyballfan | Dec 1, 2025
In reply to @pb50 "@volleyballfan Get the Budesonide and thank the stars it exists. I had no side effects except..." + (show)
Profile picture for pb50 @pb50

@volleyballfan Get the Budesonide and thank the stars it exists. I had no side effects except confidence within a week that I could be more than 10 feet from my bathroom after 7 months of hell.
I had success after Budesonide but sadly relapsed a few months later and had to do another round - again successful but again relapsed. I am now on 3mg a day as maintenance. And I still thank the stars.

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@pb50
Thank you, very reassuring. Did you get constipated? Started Budesonide yesterday.

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pb50 | @pb50 | Dec 1, 2025
In reply to @kristimotch "I am looking for others diagnosed with microscopic colitis. I'm new to the group and the..." + (show)
Profile picture for Kristi Motch @kristimotch

I am looking for others diagnosed with microscopic colitis. I'm new to the group and the condition. Any help or information about what my future holds would be appreciated.

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I don’t recall any - but frankly I might have welcomed it after 7 months of horrendous colitis. That said, I am prone to medication-caused constipation -and find that the best natural solution is 3 cups a day of green salad with a small amount of an oil-based dressing like Italian just to toss it. I believe green leaf lettuce, spinach, or arugula are more effective than iceberg. I just throw a protein in - salmon, chicken, egg, tuna, etc - and spread that 3 cups over a couple of meals. You could also add a stool softener if that doesn’t work in a couple of days. I would have been terrified to use a laxative and would check with your doc before doing so.

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ndough | @ndough | Dec 1, 2025
In reply to @pb50 "I don’t recall any - but frankly I might have welcomed it after 7 months of..." + (show)
Profile picture for pb50 @pb50

I don’t recall any - but frankly I might have welcomed it after 7 months of horrendous colitis. That said, I am prone to medication-caused constipation -and find that the best natural solution is 3 cups a day of green salad with a small amount of an oil-based dressing like Italian just to toss it. I believe green leaf lettuce, spinach, or arugula are more effective than iceberg. I just throw a protein in - salmon, chicken, egg, tuna, etc - and spread that 3 cups over a couple of meals. You could also add a stool softener if that doesn’t work in a couple of days. I would have been terrified to use a laxative and would check with your doc before doing so.

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@pb50 Really ripe bananas will also help. When I have a flare up, I eat the green ones.

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pb50 | @pb50 | Dec 1, 2025
In reply to @kristimotch "I am looking for others diagnosed with microscopic colitis. I'm new to the group and the..." + (show)
Profile picture for Kristi Motch @kristimotch

I am looking for others diagnosed with microscopic colitis. I'm new to the group and the condition. Any help or information about what my future holds would be appreciated.

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Cool. I can never seem to eat bananas before they are over-ripe so I tend not to buy them now that I don’t have kiddos around.

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ndough | @ndough | Dec 1, 2025
In reply to @kristimotch "I am looking for others diagnosed with microscopic colitis. I'm new to the group and the..." + (show)
Profile picture for Kristi Motch @kristimotch

I am looking for others diagnosed with microscopic colitis. I'm new to the group and the condition. Any help or information about what my future holds would be appreciated.

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Also, if you like licorice (the real kind - black), try that. It’s a natural laxative. But don’t overdo it on the licorice!

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pb50 | @pb50 | Dec 1, 2025
In reply to @ndough "Also, if you like licorice (the real kind - black), try that. It’s a natural laxative...." + (show)
Profile picture for ndough @ndough

Also, if you like licorice (the real kind - black), try that. It’s a natural laxative. But don’t overdo it on the licorice!

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@ndough
Eeeewwwwww. Licorice is not for me -LOL

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pb50 | @pb50 | Dec 1, 2025
In reply to @volleyballfan "@pb50 Thank you, very reassuring. Did you get constipated? Started Budesonide yesterday." + (show)
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@pb50
Thank you, very reassuring. Did you get constipated? Started Budesonide yesterday.

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@volleyballfan

Fyi it only took about 5 days for me to thank the GI Gods that it was working!!!

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volleyballfan | @volleyballfan | Dec 2, 2025
In reply to @kristimotch "I am looking for others diagnosed with microscopic colitis. I'm new to the group and the..." + (show)
Profile picture for Kristi Motch @kristimotch

I am looking for others diagnosed with microscopic colitis. I'm new to the group and the condition. Any help or information about what my future holds would be appreciated.

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Thank you. How long did you stay on it? Have been in the meds for three days snd already see an improvement.

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