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What is the best treatment for carcinoid tumor in mesentery?
I am going to have to seek a treatment; what do you suggest
1tumor.
I have a carcinoid tumor in the Centrist part of my body and it is inoperable by my surgeon.
If you have such a tumor please tell me what you are doing.
Mine is growing real slow and I have not done anything will check in June of this year to see if it is still growing slowly. Do not know if left alone will it massify.
If you suggest certain treatments and throw out the treatment, define what the medicine is going to do. They have suggested a shot once a month and I see people getting a shot once a month with different medications.
treatment one
PRRT ( peptide receptor radionuclide therapy) is a radiation treatment.. I was on Ocreotide injections for over a year, it did stop the flushing, and the spread of the tumors, but a few of existing tumors were still growing. The PRRT treatments were to stop the ones from growing.. I will be receiving my third treatment at the end of the month, and the last one in May. I will also be getting a scan prior to the next treatment . The PRRT treatment I am receiving is Lutathera. There is a lot of info on line..
treatment two
Researchers are also looking at a new type of radiation, called radiopharmaceuticals. This treatment uses a drug that is attracted to carcinoid tumors. This drug is then attached to a radioactive substance and injected into the body. Once the drug reaches the tumor, it gives off radiation that kills the tumor cells.
treatments three and four
My husband took Octreotide shots for about 18 months, side effects slightly looser stools & then started breaking out into face & neck rashes so he was switched to Lanreotide. He has been fine with this new shot . We have been fighting this since 2021
My personal experience is prrt is a four hour long session finishing up with a landreotide injection. An advanced treatment prrt, and landreotide is to keep the net at bay. There’s plenty of information available online. I have just finished prrt and still on landreotide. Both were tolerable for me and I hear different for everyone.
I am also one of the lucky ones with carcinoid syndrome.. started with Lanreotide which didn’t help had ab 15-20 episodes a day, Dr. switched me to ocreotide over a year ago, within hours the hot flashes subsided, and have been under control since then.. I pretty much can eat anything, I do try and stay away from carbs, and sugar but that is to prevent me from going on diabetes meds.. have a wonderful weekend!
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I have similar calcified mesenteric masses. I chose not to do "exploratory" surgery but am taking Octreotide injections monthly. After 4 injections, I am not experiencing any issues or other symptoms. I will do another CT or PET after 6 injections, so that will be my barometer. I too have changed my already healthy diet and continue to exercise. Best to you!
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2 ReactionsSeems like it’s slow growing but I think I’d do some type of treatment before it gets any bigger. What does the Dr recommend?
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1 Reactiondoes the shots have side effects which is less sever tje o or the l
I understand that the shots hurt
The lanreotide and octreotide injections can be a little painful during the injection but side effectss are typically minimal. You do need to monitor your blood sugar as the meds can cause an increase. Some experience stomach issues. Many have no problem at all
I know that the concern about side effects of any treatment is real. But you need to seriously weigh those concerns over not doing anything.
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2 ReactionsThanks folks do you know about the light therapy
Continued tumor growth while taking lanreotide injections, so was switched to oral chemo, Everolimus. CT scan this week showed reduction in all tumor sizes. Side effects have been minimal. Recommend talking to your Dr about it.
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1 Reactionthank you so much will do
@panorman3
do you have a sugar monitor that you do not have to stick yourself are they some things you ca n do to keep the sugar down?
@panorman3 Your doctor will likely keep an eye on the blood sugars through regular bloodwork. That is common while on any form of treatment, including lanreotide. That will include a glucose test.
my cancer is in the mesentery has anyone used the radiation therapy, how many doses what is the side effects?