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Alternative treatments

MAC & Bronchiectasis | Last Active: Jan 19 6:43pm | Replies (87)

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Profile picture for pacathy @pacathy

@galing As I said, my treatment is fairly aggressive because some think it caused the CT changes and bronchiectasis. The other theory is that I had MAC and cleared it without meds.
I’m currently on Mometazone sinus rinses 1-2x/day. Trying to cut that back.
I’m restarting Mayo’s (mixed there) triple spray with Mometasone, Ipratropium, and diphenhydramine. If you can’t get this, mometasone is a steroid nasal spray and is OTC. Ipratropium is prescription and is the most helpful in drying me up. Astepro is similar to diphenhydramine, but tastes worse. I used these 3 while trying to get local docs to order from MAYO. The 2 sprays seem to work much better than individual 6. I was on Astepro before I went to Mayo and it helped, but was not good control.

I also took 1 antihistamine-Allegra or Zyrtec until I had a recurrence of autoimmune skin disorder and am on higher doses.
The steroids and Ipratropium are controversial in bronchiectasis. Mometasone has less systemic effect than others. I asked my pulmonologist if it was Ok to take higher dose steroids when I get the bronchitis/sinus/ear infections and he said short term high dose would help decrease the inflammatory response.
It seems some pulmonologists don’t like Ipratropium because of drying effect esp as a nebulized med. My Mayo doc said “pulmonologists always worry about excess secretions.” I have clearly been better with fewer infections when my secretions are better controlled, though I do keep trying to decrease the mometasone.

Good luck!

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Replies to "@galing As I said, my treatment is fairly aggressive because some think it caused the CT..."

@pacathy
Thanks so much for your reply and the details re your treatment. I too have been discouraged from using anything with a drying effect. I’ll check with my Dr on the next visit.