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What Type of Doctor Diagnoses CRPS/Resource re: Treatment
Chronic Pain | Last Active: 11 hours ago | Replies (21)Comment receiving replies
@georgescraftjr Hey there, I'm so deeply sorry to hear of all your suffering and pain struggles. Wish I could turn the intensity down for you ... good thing about crps is it can fluctuate, so everyday is somewhat different. I have pretty severe and widespread CRPS that developed after a traumatic surgery due to a nasty complication from a previous one, so I can truly empathize with your struggles. For me, it was primarily a pain specialist that I went to who recognized it right away, but also my neurologist - he had a big part in this and has supported/advocated for me fully to this day. CRPS is not talked about enough and often misdiagnosed. I have a bunch of links I can probably send you that I have saved (a lot are specific to certain "defections" per se), one being this one -
https://www.rsds.org
Please keep us posted and we will help you in any way that we can in your journey. You're not alone and you're not crazy - what your body is telling you is very real. It's getting others who have the power to help to see the red flags and take action. Thankfully, my pain Dr has CRPS himself, so it is very personal for him and he is passionate to help people. Best of luck to you!
Replies to "@georgescraftjr Hey there, I'm so deeply sorry to hear of all your suffering and pain struggles...."
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@rivermaya34
Hi maya34. I am so happy to see your post today. I am suffering CRPS for longtime but conformed after four times Stellate Ganglion shot last year. I was told the first shot is to confirm the diagnosis and the following shots were treatment. But I have no response to those shots at all. My incidence was happened 10 year ago by doing a neck C6-C7 spinal steroid injection. The needle went too far to injured my nerve. I had to scream but the damage was done.I have been having left 5th, 4th finger pain since. I was treated again and again with the same shots for many years until Dec, 2023. My surgeon did C5-C7 fusion due to severe stenosis( But I never have a neck pain. That surgery triggered more pain on my pinky finger. Then I saw the hand specialist. He checked and according to the Budapest rules. He said I have CRPS. Then I went to Cedar Sinai in LA very well known hospital to see a Doctor who is familiar with CRPS. He said to his assistant that for sure I DO have this terrible disorder. I am under a pain specialist care. I am taking Morphine before. Since Morphine is not available in LA . He put me on Oxycodone 10mg Q6h. I also had Ketamine infusion 4 time with a little help. My doctor said the dose is not high enough. I will go back again. I heard one person told me that he had Ketamine infusion continue 5 days. He had no pain for one year. the another time he had no pain for two years. I think that is a wonderful outcome.
How are you doing now? I like to share the treatment with you since your doctor has the same disorder. Because CRPS is not well known disease. A few people heard but the treatment are limited too. I am living in LA, CA. I google it now, There are a little more clinic mentioned Ketamine infusion. Have you tried? What is your doctor's opinion?
Would you please keep in touch with me? Thank you for reading.