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Tapering off of Prednisone

Polymyalgia Rheumatica (PMR) | Last Active: Feb 28 5:49am | Replies (313)

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@johnbishop

@heretaunga1947 @virginiaj and others, I'm certainly no expert and have no medical training or background but the way my rheumatologist explained it to me is that once you have PMR it never goes away but it can go into remission with treatment of the cause of the symptoms (inflammation) which is what the prednisone treats. Each of us are affected differently and can take longer to taper off of the prednisone and there are things we can do to help reduce the symptoms and keep them at bay when/if the PMR goes into remission.

Here's an older study on the question -- Definition of remission and relapse in polymyalgia rheumatica: data from a literature search compared with a Delphi-based expert consensus: https://pubmed.ncbi.nlm.nih.gov/21097803/

Here's some more information - citation from article below... "Without treatment, polymyalgia rheumatica sometimes goes away on its own over several years. With treatment, symptoms lessen or go away within days. Treatment is generally necessary for at least six months. And it often continues for one to two years or even longer.Apr 18, 2019" -- Polymyalgia Rheumatica - Harvard Health:
https://www.health.harvard.edu/a_to_z/polymyalgia-rheumatica-a-to-z

I've had 2 occurrences of PMR. The first time took me 3-1/2 years to taper off. The second time it took me 1-1/2 years to taper off. I started making lifestyle changes which I'm sure has helped - eat better, exercise more (in the keep moving category 🙂 ).

Hoping for a pain free day for all my cyber friends with their PMR and also that it goes into remission ASAP!

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Replies to "@heretaunga1947 @virginiaj and others, I'm certainly no expert and have no medical training or background but..."

@johnbishop John, I was wondering at what point did your dosage change considerably during the 3.5 years? Did you start at 20mg/day and at what point did you start your taper? the reason i ask is i know everyone is different but I am at the 7 month mark having averaged about 20mg/day and was asked to try and decrease to 10mg/day by September. When I hit 15mg/day for 4 days the PMR came back with a vengeance and I am now 4 days trying to climb out of this pain by going back up on the prednisone, overshooting my original mark to get things under control. I have recently started methotrexate at 15 mg/week in an attempt to "spare" the prednisone. My question is for everyone who has these relapses, do you find that you need to go above previous dosages to get it back under control? Thanks