Hello, my name is Alan and I had a TBI May 2025 fell off ebike late at night on a really nice railtrail ( old railroad bed blacktopped very well maintained along the river and through woods. Had nothing to do with the 85lb bike and drizzle. The new mag flashlight kept going out shook it so much I lost too much speed and was swerving across all 10ft of trail hit fresh new gravel and happened to be at the 6' steep drop to the ditch. Bike was just to heavy pushed me laying down in the 2ft of water. Drove it up the hill, close to home something broken and must have fallen 20 times on the trail. Found the next day by the first jogger. A day to bring my body core up. Nothing conclusive after 2 weeks in the hospital. Home help did not come. Then just a mess. Finally home help is suppose to arrive 6 mo late. Neurologist is confused looking into systems developed 2 years ago. 4 1 hr sessions of speech therapy and everyone called it good on the TBI. Symptoms are getting worse with a huge divide between recall and memory. New and the last few years are fading. Explained balance issues, constant mistake well above the norm. Black Friday included an entire new cook set. 12 meals left on over night to cook. Put up a smoke detector on the wall next to stove and a camera because it left on. Rather than worry I'd rather see if i left in a rush. Volunteers I have been with for 7 years can't name but a few and need their name tag in site. Much is off. The doctors around me can't diagnose 1 out 5 things I've thrown at them. There is nothing. I lived most of my life in the country outside of Detroit where you certainly had options of some of the best care in the country. They put the neurological testing back up with a wait list of 6 mo again at U of M, after that it will be a year before any other appointment gets made. I am alone. Continuously making adjustments and mistakes. I have exhausted every possible resource. I moved into the city to be 2.5 miles from the large hospital campus. They know own everything except a few off shoots but pretty much bought out the entire top half of the state. Every hospital. I move up here with 2 very serious 2nd opinions regarding a different operation, went in for a 3rd here and was told nothing wrong. My top specialist said a few years ago you need to get to the Cleveland Clinic by pass Ann Arbor. Just hasn't been possible regarding that issue, all he could say is yes there is something serious wrong related to your lungs nothing will show up on about 10 tests but he can tell it's there but can't see it any form of test results or imaging and that is why I have needed to see a neuromuscular specialist along with the team of 5 physician well that ship sailed. The comment was just for overall perspective.
Winter is not my happy time nor productive time of year. With all the chaos I think I only got 5 days of summer. You become to get worried when no one will listen. I can't even get my words close enough that grammarly can help out and have had to resort to asking Siri how to spell words I just can't access. What do you do except double down on access to apps or anything cognitive that puts a strain on the brain the good ones wear me out just like my hour with the speech pathologist. I hope the good news of a home help aid living near by comes to fruition after waiting a month at a time for what should have occurred in a week. Thankfully I heal fast because I was black and blue and scraped all over and really nothing needed bandaging things are just broke where they can't see.