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Tapering off of Prednisone

Polymyalgia Rheumatica (PMR) | Last Active: Feb 28 5:49am | Replies (313)
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@jules11

Rosemary’s post was so helpful and gives hope. I’m tapering down from 20mg ... over three months I am now at 8mgs. Told the rheumatologist that I wanted to hasten the tapering and she said OK, fortnightly until you reach 7mg, which will be next Tuesday. After that she wants me to go four weekly tapering, 1mg at a time. Just wondering what Rosemary’s condition was, are we talking PMR, which is my condition.

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Replies to "Rosemary’s post was so helpful and gives hope. I’m tapering down from 20mg ... over three..."
Rosemary, Volunteer Mentor | @rosemarya | Mar 11, 2019

@jules11, I do not have PMR. I took prednisone (5 mg) after organ transplant for around 6 years. I was surprised that even at that small dose that I felt side effects. I do not know what the effects are or if they might be different due to PMR. I do not know what your individual tapering will be like, I only intended to share how I managed my taper.
I did experience pain, headaches, stiffness, tiredness. But because I understood the reason for those discomforts, I was able to accept the temporary discomfort. I also found out that the prednisone must have been masking a kind of asthma that occurs during activity and humid weather. But I have that under control now.
Sending you strength and patience.

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