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I had Cushing's Disease and had a pituitary tumor removed in 2015. They believe I probably had CD for 5-6 years before diagnosis. I, too, was going through menopause at the time and the doctors cited that as the reason for my symptoms over the years. I had many of the symptoms you did. If you read about Cushing's, there are some very definite symptoms associated with it. I was finally diagnosed in 2015 and had surgery. The recovery can be a little difficult because your body has to adjust to the change in hormones. Once that was over, I felt great! I did do physical therapy because I had lost muscle from the disease.
I agree with some of the others in this post - an experienced neurosurgeon and hospital are very important (how many of these have they done?)
Let me know if you have any other questions. Wishing you the best.
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@drs22 Thank you for telling me about your experience. I appreciate it and it gives me hope that I will someday day feel better.
I have a lot of symptoms but the two that seem to rule my life right now is the horrible sweating and zero energy. Also, I have a lot of joint pain which I have seen a rheumatologist for and have been diagnosed with fibromyalgia and chronic fatigue syndrome but I think all my symptoms are related.
Did you have bad sweating? I could maybe say some of the other symptoms were caused by other things but these two are what I asked for a referral to an endocrinologist for. After blood, saliva and 24 urine tests that showed my cortisol was really high was what led to the MRI that showed the tumor so then the other symptoms were attributed to the tumor also.
I just want to feel normal again.
Everyone’s response give me hope and I need hope right now.
Thank you.