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Gluteal tendinopathy - endless pain - losing my mind

Chronic Pain | Last Active: 3 days ago | Replies (64)

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@emarks

I can totally empathize with how hard it is to deal with sudden, chronic pain stealing your quality of life and mental health. I used to be able to do so much and loved to dance! I used to walk fast and was very independent. Things started to worse. after I had my only child at 40. My spine symptoms started around 41-42 and worsened gradually ever since. That is when I found out I was born with a narrow spinal canal. Normal width is 15-17mm and mine is 10mm and my current L2-L3 herniated disc makes it 8mm.

Before my lumbar surgery to decompress and fuse L3-L5, my MRI showed my L4-L5 severely blocked and no space at all for my spinal cord. It caused me low back pain, pain/weakness and numbness from hips/buttocks down legs to feet. If I stood for a few minutes or tried to walk my dog, my feet would go totally numb. Standing up, going up/down stairs, bending, lifting, sitting was hard. Lying down seemed the only relief. I had tried about 6 total spine injections over several years and when the last 3 in a row did nothing for my pain, I moved to surgery.

It is good to try a few more spine injections, physical therapy, massage, acupuncture, pain patches/roll-ons/creams (lidocaine, Voltaren gel, etc.), and antidepressants. I did try several medications and there was a time that Cymbalta/duloxetine helped (prescribed for arthritis, nerve, fibromyalgia pain and depression). There was a period I took Cymbalta/duloxetine and Wellbutrin/duloxetine at the same time. I also have idiopathic small fiber neuropathy. Gabapentin and pregabalin (Lyrica) doesn’t work well for me because it makes me too dizzy/tired and actually increased my nerve pain.

You may want to look into to a psychologist that specializes in chronic pain and its impact on mental health. It is good you are working with a psychiatrist on your depression medications. I worked with my primary doctor when really struggling with depression in 2023 and they tried different medications and combinations but nothing was helping or caused too many bad side effects. My psychiatrist was patient working with me to gradually increase me from 150mg Wellbutrin/bupropion to 300mg then 450mg and stop everything else causing me bad side effects. I am in a much better place.

I am going to try the Signal Relief patch to see if it helps with my pain. They aren't cheap but I have heard they have helped many. Be careful taking too many NSAIDs like Motrin/Advil. I learned the hard way taking too much for pain and it caused me esophagitis and gastritis erosions. I now only take extra strength Tylenol as needed for pain/headache/fever.

Just fyi…my symptoms for cervical spine compression and myelopathy were daily headaches, tinnitus, neck/shoulder pain, arm/hand numbness/weakness, dropped things and handwriting worsened, bladder control was affected and walking/balance became difficult. After surgery on my C5-C6 (later C6-C7), these symptoms improved but delayed diagnosis caused permanent damage to my spinal cord due to longterm compression (have residual shoulder/arm/hand weakness). I have been told that your lumbar spinal cord/nerve roots may be able to repair/recover but some longterm nerve damage is possible if you delay surgery. Have you read in detail what your MRI shows in your lumbar spine? Do you have a herniated disc, bone spurs/osteophytes, central or foraminal stenosis, hypertrophy, thickening of ligamentum flavin? Do you have facet joint degeneration? Did you have an accident or injury before your spine/hip/buttock pain? Do you work a physical or office/desk job?

You are not alone in your suffering and you can reach out to me anytime as I am happy to share experiences of what works/doesn’t work.

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Replies to "@emarks I can totally empathize with how hard it is to deal with sudden, chronic pain..."

@dlydailyhope
I can't tell you how much I appreciate your taking the time to respond, and I'm so sorry about what you've been through. Far worse than my stuff. The details on what you've done to try to deal with it are very, very useful and I thank for being so open about everything.
The literal bottom line on the MRI on lumbar spine, the "Impression" from the doctor who first read it, was just the disc pressing on the nerve. A couple of the other things you mention were noted in the very detailed description. But all as minor and thus weren't even mentioned under the "Impression."
No specific injury to my knowledge, and I'm retired. Before this I walked regularly - not sedentary. And I still walk, although not as much recently.
What's really annoying is how the buttock/hip pain has increased so much in the last 6-8 weeks. In terms of wear and tear, besides my age, 71, it's possible that many years of poor technique in pulling out a heavy container of water from my basement dehumidifier, and worse technique in emptying it into a sink, have finally caught up with me. Especially the twisting motion when emptying.
And as you know this stuff is so interconnected. Doctor told me that even if L5/S1 pain has subsided, he said that the S1 nerve connects with the affected glute muscles/tendons, and if they're not getting the signals they're supposed to from the nerve, it makes things worse.
Anyway, I so much appreciate your response and your invitation to reach out to you - I'm sure I will!