Connect
← Return to Brinsupri follow-up
Discussion
MAC & Bronchiectasis | Last Active: 15 hours ago | Replies (333)
Comment receiving replies
@irenea8 To clarify, LRI after dental work isn’t unusual for those of us with lung disease. I’m not sure how Brinsupri might influence that.
As for side effects, I really hope everyone taking Brinsupri continues to share their own experiences. The comment that it has “a lot more side effects than anticipated” felt a bit vague to me. Are you currently on it, and have you experienced side effects yourself? I hope it helps you far more than it harms. For now, it’s the only FDA-approved option we have for this disease. So far, it has helped me more than harmed me, but it's still early.
Replies to "@irenea8 To clarify, LRI after dental work isn’t unusual for those of us with lung disease...."
Connect
@scoop
Thanks for the clarification about the dental work Scoop.
People have been sharing their experiences here and I hope they continue to do so since this is a new drug. I have been saving and keeping track of the side effects vs benefits reported. I am seeing a lot more side effects reported than I personally anticipated with Brinsupri. I have not tried Brinsupri yet. Remember I do not have Part D as yet. I do not think people should talk themselves out of the side effects some of which seem fairly concerning to me. BUT of course with any drug you need to weigh the pros with the cons and decide.