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MAC & Bronchiectasis | Last Active: 15 hours ago | Replies (333)
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@irenea8 "To me it seems the drug has alot more side effects than we had anticipated." That's why I have been sitting on the sidelines listening. There is a big difference between clinical trials on a carefully curated population and prescribing to the population as a whole, with different severities of disease, many other health issues, sensitivities, and medications. I always think of a new drug release as Testing - Phase 4.
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@sueinmn - I'm on a roller coaster about Brinsupri. I've had numerous squamous cancer requiring Mohs surgery. I also have lichen planus that flares up in my gums--I've lost several teeth and the gums are not strong enough to do dentures or implants. Since these two things are pronounced side effects--"thickening of the skin and gingivitis" I'm not sure what I'll do moving forward. I see my pulmonary doc Tuesday so I know we will be having a conversation about Brinsupri. Just not sure which way to proceed.