← Return to Meningioma: Anyone else? I'm frightened

Discussion
pixie49247 avatar

Meningioma: Anyone else? I'm frightened

Brain Tumor | Last Active: 3 days ago | Replies (617)

Comment receiving replies
Profile picture for Maryann @mkoch

@as72: I am not a medical professional in any capacity but based on all the information I collected when dealing with my own 2.7 cm. meningioma it would seem your 1.8 cm. meningioma is definitely causing symptoms. I didn't really have a headache, per se, but if you pressed on the left side of my forehead, right above my left eyebrow, it was tender and somewhat painful to touch. I also had persistent (and annoying) burning in my left nostril. (Saw an ENT 3 times and he said, "Can't see anything going on here." When the meningioma was found incidentally it was discovered it was pressing on my trigeminal nerve. The tingling down your neck sounds nerve related. Meningiomas are usually treated by surgery or radiation if they are causing uncomfortable symptoms regardless of the size. My neurosurgeon at UCSF said if possible the best outcome would be surgery to remove them. But if one's health, or the location of this usually benign tumor makes surgery not a good choice, then stereotactic radiation is a good second choice. If your neurologist says to just watch-and-wait, please get a second opinion from a neurosurgeon. In fact, I would want a second opinion from a neurosurgeon anyway because both benign and malignant tumors are in their wheel house. A neurologist's specialty is more about diseases of the brain. (But I know a lot of insurances require a referral from a neurologist to see a neurosurgeon.) Let us know it goes after you get your first consult.

Jump to this post


Replies to "@as72: I am not a medical professional in any capacity but based on all the information..."

@mkoch
I just got into UCSF. What neurosurgeon did you go to? Were you happy with them?