Meningioma: Anyone else? I'm frightened

Posted by pixie49247 @pixie49247, May 12, 2023

I just found out I have a Meningioma tumor from a MRI I had for something else. Doctor said they are almost always benign and am going to get an appointment with a neurologist. Anyone else have one of these. I’m getting very frightened now.

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I had CT last week after I slipped to scan for fracture and was found. Going for mri next week and see neurologist. Said it was small and benign but very scary

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welcome to the group,
small and benign is good, I'm not a doctor but from all the post they grow at a very slow rate.
i wouldnt really panic because had the doctor needed to get you in right now , then i may ave been concerned. my tumor took over a year of growing from what they told me and came from my lung. just saying, now ill say a prayer for you--------sent.

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Profile picture for as72 @as72

I had CT last week after I slipped to scan for fracture and was found. Going for mri next week and see neurologist. Said it was small and benign but very scary

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@as72: It's always so scary to hear there is any kind of growth in our brains. But as your doctor stated they are almost always benign. There are a lot of very informative posts on this forum so scroll back with pen and pencil in hand and reading about other's experiences will help you formulate a list of questions to ask the neurologist. Personally, I think one of the most important questions is,- based on my meningioma's location what critical structures is it impacting? - Knowing this will help you decide if you can just lay low and not worry too much or if you should be more proactive in choosing a course of action.

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Profile picture for Maryann @mkoch

@as72: It's always so scary to hear there is any kind of growth in our brains. But as your doctor stated they are almost always benign. There are a lot of very informative posts on this forum so scroll back with pen and pencil in hand and reading about other's experiences will help you formulate a list of questions to ask the neurologist. Personally, I think one of the most important questions is,- based on my meningioma's location what critical structures is it impacting? - Knowing this will help you decide if you can just lay low and not worry too much or if you should be more proactive in choosing a course of action.

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@mkoch what is scary is that I get continuous headaches on the left side, (they don’t last long or need Tylenol) but have constant stiffness and tingling down my neck and believe it’s related. When I sleep on my left side I get a headache so even though they say it’s small, 1.8 cm, it must have some impact.

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Profile picture for as72 @as72

@mkoch what is scary is that I get continuous headaches on the left side, (they don’t last long or need Tylenol) but have constant stiffness and tingling down my neck and believe it’s related. When I sleep on my left side I get a headache so even though they say it’s small, 1.8 cm, it must have some impact.

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@as72: I am not a medical professional in any capacity but based on all the information I collected when dealing with my own 2.7 cm. meningioma it would seem your 1.8 cm. meningioma is definitely causing symptoms. I didn't really have a headache, per se, but if you pressed on the left side of my forehead, right above my left eyebrow, it was tender and somewhat painful to touch. I also had persistent (and annoying) burning in my left nostril. (Saw an ENT 3 times and he said, "Can't see anything going on here." When the meningioma was found incidentally it was discovered it was pressing on my trigeminal nerve. The tingling down your neck sounds nerve related. Meningiomas are usually treated by surgery or radiation if they are causing uncomfortable symptoms regardless of the size. My neurosurgeon at UCSF said if possible the best outcome would be surgery to remove them. But if one's health, or the location of this usually benign tumor makes surgery not a good choice, then stereotactic radiation is a good second choice. If your neurologist says to just watch-and-wait, please get a second opinion from a neurosurgeon. In fact, I would want a second opinion from a neurosurgeon anyway because both benign and malignant tumors are in their wheel house. A neurologist's specialty is more about diseases of the brain. (But I know a lot of insurances require a referral from a neurologist to see a neurosurgeon.) Let us know it goes after you get your first consult.

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