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Meningioma: Anyone else? I'm frightened

Brain Tumor | Last Active: Nov 29 11:46pm | Replies (605)

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Profile picture for as72 @as72

@mkoch what is scary is that I get continuous headaches on the left side, (they don’t last long or need Tylenol) but have constant stiffness and tingling down my neck and believe it’s related. When I sleep on my left side I get a headache so even though they say it’s small, 1.8 cm, it must have some impact.

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Replies to "@mkoch what is scary is that I get continuous headaches on the left side, (they don’t..."

@as72: I am not a medical professional in any capacity but based on all the information I collected when dealing with my own 2.7 cm. meningioma it would seem your 1.8 cm. meningioma is definitely causing symptoms. I didn't really have a headache, per se, but if you pressed on the left side of my forehead, right above my left eyebrow, it was tender and somewhat painful to touch. I also had persistent (and annoying) burning in my left nostril. (Saw an ENT 3 times and he said, "Can't see anything going on here." When the meningioma was found incidentally it was discovered it was pressing on my trigeminal nerve. The tingling down your neck sounds nerve related. Meningiomas are usually treated by surgery or radiation if they are causing uncomfortable symptoms regardless of the size. My neurosurgeon at UCSF said if possible the best outcome would be surgery to remove them. But if one's health, or the location of this usually benign tumor makes surgery not a good choice, then stereotactic radiation is a good second choice. If your neurologist says to just watch-and-wait, please get a second opinion from a neurosurgeon. In fact, I would want a second opinion from a neurosurgeon anyway because both benign and malignant tumors are in their wheel house. A neurologist's specialty is more about diseases of the brain. (But I know a lot of insurances require a referral from a neurologist to see a neurosurgeon.) Let us know it goes after you get your first consult.