Does Mayo provide 2nd Opinions to interpret Prostate MRI?

Posted by broderbund1 @broderbund1, Nov 20 8:17am

Has anyone utilized this service? If so would appreciate guidance on the following:

1) Can appointments be set up virtually for something like this?

2) I have a disk with the MRI images. Is there anyone to upload that or do I need to send the actual CD itself to Mayo?

3) How long does it typically take to get an appointment for a MRI second opinion read?

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

Profile picture for westernflyer @westernflyer

jc76: Thanks for your comment. In 2010, I underwent proton radiation therapy at Loma Linda Hospital in Loma Linda, California. I spent 2.5 months each weekday morning under the gantry proton machine. I came to meet and know a number of patients each morning whilst waiting for my turn. Loma Linda was a pioneer in proton radiation therapy, going back to the mid-1990s. Initially, for children with brain cancer, the program was modified to include prostate cancer and other targeted cancers for which proton radiation therapy was beneficial. I recall the initial cost of the Cylatrone machine was over 200 million dollars (in the mid-90s).
Diagnosed (two biopsies) at Gleason 3 plus 3; PSA: 6.47. Over the past couple of years, my PSA has begun to rise.
"watchful waiting" is the keyword..My posting was a reference to a Mayo study in that certain vegetables (brussels sprouts) have a unique "chemical" which slows or inhibits cancerous reproductive growth. Please review my initial discussion on this topic. Just search "westernflyer". I compared my PSA from last Feb to a PSA of just a couple of weeks ago and no change. It has stayed the same...although elevated from having proton radiation (15 years ago), the PSA remains "normal". Keep in mind, BPH can also elevate your PSA without any symptoms or physical issues. As mentioned, I had an MRI and PET scan and nothing.. Lastly, while waiting each morning for the proton "zap", I had an opportunity to speak to others waiting their turn. Almost 80% were physicians. That alone reinforced my singular decision to undertake proton radiation therapy. RH/Florida

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@westernflyer
Yes have heard about Loma Linda many many times.

It is hard sometimes to accurately state to others why proton radiation is such a great tool dealing with cancer. You mentioned children. When I was being treated at UFHPTI the entire side of the gantry hallway (they have 5 gantries) was special rooms for children.

Proton radiation was slow to develop because as you mentioned so expensive and why there are so many more photon treatments facilities than proton. UFHPTI informs all it's patients their initial facility finished in 2006 cost 125 million dollars and that was back in 2006.

They just underwent a complete upgrade of all their gantries to latest proton equipment. They have 5 gantries. I am waiting for Mayo Jacksonville to open their new cancer center with proton radiation. It will be a great addition to Mayo Jacksonville.

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Thanks for the followup comment.

One morning as I was walking to the gantry with the nurse/technician, I passed what was perhaps a two or three-year-old child. His/her head was marked every few centimeters no doubt allowing for targeting the brain cancer of this child.

I happened to end my 2.5 months of treatment with a sort of "convention" of those who underwent proton radiation therapy. The speaker called out to over 125 attendees.."how many of you had PSA over 10?" Everyone raised their hands..he then went to 20, then 30, then 40 and still hands went up. Then the speaker asked how may were over 100 and two or three raised their hands. Then in conclusion, the speaker asked how many now have PSA under 4..and everyone raised their hands (that I could see). At my conclusion and out processing, I was awarded.."The Brotherhood of the Balloon" certificate. Why you ask? Because to position the gantry correctly, the prostate had to be "fixed". Just prior to the gantry moving into position, the nurse would insert a balloon in the rectum and inflate it. This fixed the prostate gland. (I went through a test phase where I had a full body case and the balloon inserted, then scanned. This procedure assured the location of the targeted proton was correct" So it goes for science..and that was 2010 or 15 years ago. it is the cost/expense of building these medical marvels which is the reason so may have to use photon in lieu of proton. So ti goes!

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Profile picture for westernflyer @westernflyer

Thanks for the followup comment.

One morning as I was walking to the gantry with the nurse/technician, I passed what was perhaps a two or three-year-old child. His/her head was marked every few centimeters no doubt allowing for targeting the brain cancer of this child.

I happened to end my 2.5 months of treatment with a sort of "convention" of those who underwent proton radiation therapy. The speaker called out to over 125 attendees.."how many of you had PSA over 10?" Everyone raised their hands..he then went to 20, then 30, then 40 and still hands went up. Then the speaker asked how may were over 100 and two or three raised their hands. Then in conclusion, the speaker asked how many now have PSA under 4..and everyone raised their hands (that I could see). At my conclusion and out processing, I was awarded.."The Brotherhood of the Balloon" certificate. Why you ask? Because to position the gantry correctly, the prostate had to be "fixed". Just prior to the gantry moving into position, the nurse would insert a balloon in the rectum and inflate it. This fixed the prostate gland. (I went through a test phase where I had a full body case and the balloon inserted, then scanned. This procedure assured the location of the targeted proton was correct" So it goes for science..and that was 2010 or 15 years ago. it is the cost/expense of building these medical marvels which is the reason so may have to use photon in lieu of proton. So ti goes!

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@westernflyer
And now they have Space/Oar rather than the balloon.

There are still those who cannot have the Space/Oar or don't want the procedure.

When I finished my treatment (was always at same time) the next person I could see was going to get the balloon as the techs had it out to get ready for him.

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Profile picture for Laurie, Volunteer Mentor @roch

@broderbund1
Welcome to Mayo Connect. Hopefully a member who has gone through the process of 2nd opinion for a MRI review can provide addition information.

You can also contact Mayo directly with your questions:
Start your appointment request use this link http://mayocl.in/1mtmR63.
Your request will be reviewed and a time will be set up to discuss with an appointment coordinator to assist you with the process.

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@roch I dont think I need a second opinion i left not understanding whats happening to me I assume I had got into a uncivil matter whole time they were testing me in my mind they were admitting me a psych ward I going back to Ohio Health to receive the rest now that I see what they were attempting to help me with they were not hurting me it was help

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