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@santosha biggest challenges right now
are changes in my ability to multi-task and my cognition and my motivation. I have a best friend and a sister who are both close and do the best they can to help. I've been alone most of my life and am used to doing for myself. Dependency doesn't come easy. The hardest part in the early days was everybody trying to remind me and help me remember, particularly vacations. Ultimately I put together a paper that explained the problem with my memory to help them understand those losses are no longer lost memories. They are events that never happen to me and there is nothing to recover. We have a forbidden phrase where I am concerned, and it is simply the words "do you remember?" A definitive diagnosis has been hard to come by.
And of course, i'm at the clinic, because they are the best to help answer that question and it looks like we're making progress slowly, but surely, but at least it's progress. I looked for and found this group because I know no one else with epilepsy, particularly at my age. I'm not sure what i'm looking for but at least now have the ear of people who know where i'm coming from.And maybe I will be able to help one or some of them in some way.
Replies to "@santosha biggest challenges right now are changes in my ability to multi-task and my cognition and..."
@absentsenior
Good Morning!
Sorry for not replying before, I was on vacation last week.
Accepting changes, especially cognitive ones, is incredibly difficult. When I was first diagnosed, accepting epilepsy and all the changes it brought to my life was one of my biggest challenges. I truly understand what you're going through.
What made a tremendous difference for me was working with a neuropsychologist since my epilepsy diagnosis. In those earlier years, she helped me come to terms with my condition and the ways my life had changed. She also taught me strategies to work around my cognitive difficulties and introduced exercises to help me keep my mind engaged and active.
Have you had access to this kind of support? If not, I can't recommend it enough. Working with my neuropsychologist has given me the strength to keep moving forward.
Chris
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I agree with you cognitive and memory mostly short term is so haunting. I have to remember my lovers and its a struggle to understand where was we before the seizure. Like I had it all in place. My body keeps stiffing and I continue to remember I had a high sense of learning and talking lately I been silent just trying to remember daily events. so forgetful not on meds yet. I must remember my appointment with Ohio health I write it down then forget where I placed it. I do remember my friends but the housing program keeps kicking them out so its a struggle to remember me since I don't they may not be perfect but they help me remember who I was and I have to know if people around me are safe to prevent a seizure again I am debating a new treatment do to I may loose more knowledge going fourth I will spend time with all of you so when I go here or with Ohio it wont be odd. I be able to rest and read trying to staff off social media for a while just remember my studies and how smart I am I need my brain to have a sharp six sense reading books revelant to me.