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Adults with absence seizures

Epilepsy & Seizures | Last Active: Apr 30 9:48pm | Replies (83)

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Profile picture for absentsenior @absentsenior

@santosha i'll apologize in advance and say I hate that question. With unaware seizures, you, of course, have no clue. Because I don't know if i'm having seizures or when i'm having seizures since I live alone.I've never felt a loss of time. I ended up coming to the clinic because I was losing long-term memory and after everybody telling me it was normal at my age. I trusted my gut and took myself to an neurologist, who advised me I had a seizure disorder.
When she retired, I applied to the clinic and thankfully, was accepted. And for the first time started getting answers.
The various medications for epilepsy have either been not effective or the side effects have been to difficult to live with.
Soon, I am being put before the committee for surgery to possibly implant a neurostimulator and will have an answer sometime in the next couple of weeks. Then I will have more decisions to make. Between the damage of the epilepsy and that of the medications, I am not the person I was and I want her back. At this moment in time, I only have to deal with social security and learning about Medicare when my epilepsy has affected my ability to learn new things. This should be a lot of fun.

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Replies to "@santosha i'll apologize in advance and say I hate that question. With unaware seizures, you, of..."

@absentsenior I understand no one should be alone with a seizure I am surrounded by hundreds of people to help keep me sharp at every day life. I don't want to forget society and how swell I am at payback and psychological appearances like spelling is hard so I am using typing tests to keep me sharp or reading tons of books then hop back on also stuttering and muscle cramps keep occuring I just strength until I get me seizure meds from ohio

@absentsenior this must be extremely difficult to go through alone. Do you have any family or close friends who will be with you after the surgery ? of course you want your own self back.
I Meditate with a Zoom group and Meditation since to help me stay more emotionally stable through these trying and difficult medical decisions
Certainly hope modern medicine can help you. I am sending you big comforting. Hugs.