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@mnewland99
This was very helpful. Incidentally, i have exactly the same gene mutations.
A few weeks ago i had blood in my urine, alot! It continued for two days then again at my next Naliri treatment. No one could pinpoint what it was, and now it’s no longer a problem. No pain with it. They suspected cystitis. Have a referral st Urologist but since it hasnt happened in a few weeks I dont think i have the bandwidth for another doctor appt!
Meanwhile, having a needed hernia repair surgery on the 15th so off chemo for one month. Also have to drop eliquis 2 days before surgery.
How long were you off of eliquis? Did you gradually stop ? Im a little concerned about just stopping it completely on one day.

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Replies to "@mnewland99 This was very helpful. Incidentally, i have exactly the same gene mutations. A few weeks..."

@gamaryanne good luck with surgery? Is it really needed? I was told about 1 year ago it was very small and it's presence hadn't been mentioned on any image reading since - which is odd to me. I skipped eliquist for 2 days or 4 pills at 5mg each. The Dr tried 2 cystoscopies about 2 werks apart. When he was unsuccessful in getting a biopsy? I went to city of Hope in Irvine. That urologist told me not to go off blood thinner begore surgery but I thought he was wrong based on former urologist and went off for 2 days. Well he was right. I went to. ER for trouble breathing and turned out I had 2 blood clots in my lungs where they thought it was a month old. Good luck to you!