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Collagenous Gastritis

Digestive Health | Last Active: Feb 21 5:28pm | Replies (459)

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@astaingegerdm

@oakbourne - it’s tough living with 2 autoimmune GI diseases. I have had collagenous/ microscopic colitis plus other diffuse GI autoimmune disease. The colitis kept me close to my bathroom for weeks. It was treated with methotrexate injections.
The other diffuse disease waxed and waned for years- responded to steroids briefly, but decided to try a immunosuppressant. After several months I had to stop, but I have been fine since.
Celiac disease is tough- strict diet control. I have 2 daughters in their 30s who recently developed celiac disease. Still trial and error. Complicated by true food allergies, also recent.
Collagenous gastritis is related to colitis, but there is no definite cure/ treatment as far as I know.

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Replies to "@oakbourne - it’s tough living with 2 autoimmune GI diseases. I have had collagenous/ microscopic colitis..."

Also seems like collagenous gastritis doesn't come by itself. My 18 yr old also has dysautonomia/POTs and thyroid issues. Diet has helped tremendously but not the cure all.

I too, have several autoimmune diseases. Type 1 Diabetes, Boop Pneumonia, now Microscopic Colitis. I'm going to the doctor today to get on Cholestyramine. It's a bile sequester binder. I had my gall bladder removed in 2000, and now the signs and symptoms of bile piling into my gut is horrendous. I wear diapers and can't leave the house. This is not an autoimmune response. Just watery diarrhea that leaves me exhausted.The less pills I take the better. For every pill you take, there are dire side effects. I too have had silent Celiac disease for years. As a wee tot, I had it in the 1950's. Mom was too busy taking care of my sick, Type 1 Diabetic father, and working hard on her job to notice the bloat, but I see it in older photos. Bloated stomach under stress that made me look fat, but zero diarrhea. It's probably the reason I had cognitive functions that weren't up to par. Your gut effects your brain. If I can stay off any drug, I'm happy. Good luck, seems everybody is suffering from GI problem and the trouble with MC; doctors don't know how to treat it. Just give a pill or Pepto Bismol. Pepto Bismol made me fall. I'm connected with the famous researcher for MC. He too has the disease. I'm a RN and have done "Fund Raising" for one disease. He wants me to help him and educate doctors on MC. I can't, because I'm sick. I only take a drug when it will save my life. Steroids are the worse. Bone disease and cataracts and my blood sugar went through the roof. Doctors don't give their families Prednisone or Steroids, but give it to us like candy. Many antibiotics will do the same for inflammation, like the old antibiotic Erythromycin. I'll take that, but no STEROIDS! I got that from a doctor who is against steroids.

Asta, I'm use to my restricted diet. I eat a Caveman's diet and doing much better. Lots of protein for healing your gut, well-cooked soft vegetables, and fruit. It's a trial and error approach. If you get desperate like me, you can always contact Dr. Fine, Enterolab to find out what you can and can't eat. No 72 hour fecal exam, just a small stool sample you mail to him. It's worth the money and maybe you can get off your destructive drugs. Many with MC have stated the drugs DON'T HELP!