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Different symptoms with long covid that were misdiagnosed for a few years.
I was dizzy and my balance was getting worse. Falling. None of the meds helped.
Bloodwork, X-rays, etc were normal. I thought they’d label me a hypochondriac.
I thought ET,(chronic leukemia) and POTS were all my diagnoses…
Finally I saw a neurologist and had an mri.
I learned another new medical condition…. NPH Normal Pressure Hydrocephalus. Leaking fluid on the brain.
A neurosurgeon will place a shunt in the brain to drain fluid.
Now I have something in common with Billy Joel - and it’s not singing!
Don’t give up trying yo find out what’s wrong with your body. Many conditions are difficult to diagnose.
It’s very discouraging when you’re told every test is normal…. But keep going. Good luck.
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@janetbender , thanks so much for this. You may THINK you don't have a Billy Joel voice but I say TRY IT once the stent is in - you never know.
I did more research and was astounded to see how this is named more often than I'd have thought. I had an MRI recently for cervical spine (an issue apart from COVID) and earlier this Fall, a CT and an MRI that included my head. I just sent your note to our care coordinator asking if the MRI and CT could be read again looking for this. I'm guessing that unless it's looked for, it may not be seen. I've asked her to find out more.
So appreciate your posting this. It's like all the others - we are supporting and providing our doctors with more information. It may not be what we need; it does add to the awareness of "something else" to consider.
You too, Janet. Thanks! We expect your first singing engagement dates posted soon!
Joan