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lukekee (Vivian) avatar

Pituitary tumor

Brain Tumor | Last Active: 18 hours ago | Replies (10)

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Hi! My husband had most of your symptoms, as well, prior to his diagnosis. After his transsphenoidal surgery, he now has to supplement cortisol, thyroid, testosterone, and growth hormones. The adrenal gland regulates function of other glands…his adrenal gland had been squished by the macroadenoma for so long, it didn’t resume function after the tumor removal. It has been four years of hormone and medication adjustments for depression, anxiety, sleep, and migraines, but his team of doctors at Vanderbilt have been so good. They are a wealth of information and help to us.
Your recovery may be much different, depending on what hormones resume, but I encourage you to keep asking for referrals, bring someone with you to appointments who can take notes for later reference.
This is really a broad answer to your question, but I hope it helps…let me know if there’s something more specific you’re wondering about. My husband was a pharmacist and I was a radiographer/sonographer, so being in medical fields helped us understand some of his health issues, but it was still so much to absorb and learn.
Praying your surgery goes well…take care of yourself and don’t be discouraged when/if things take some time to recover and heal.❤️

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Replies to "Hi! My husband had most of your symptoms, as well, prior to his diagnosis. After his..."

@jill2021 Thank for your response and yes, it is definitely helpful.

@jill2021 Thank-you so much for sharing your story, it helped me alot today. I am experiencing the same horrible symptoms, after reading some other helpful replies I realize my province knows very little about these types of tumors. I think I have Cushings disease, I was never free from the symptoms you mentioned, ever after I was able to dissolve a pit tumor with medicine 5 yrs ago. It that has recently returned. I was always questioning the physician about my issues with being adrenal insufficient and immune system shut down. I had a MRI 6 mths ago that my Doc never revealed to me, I was 6 mths before a medicine specialist was going through my chart and called me with the news a little over a week ago. Still no talk of an endocrinologist yet, I'm thankful I least got the news and the medicine specialist was able to prescribe the medication. My prolactin has always been high since very young, I was never investigated into. I am learning alot from your message, I think I may have to visit the idea of going to the U.S . for help. My goodness it's alot on a body, I can't believe everyone's stories, so much knowledge for us all. I'm praying for us all and I thank you a million times for sharing, it did my heart good! You will overcome this, your so strong💪Warm regards, Jillian.🙏✝️🕊️🌍❤️