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Just starting prednisone for recent PMR dx. Terrified of side effects
Polymyalgia Rheumatica (PMR) | Last Active: Dec 22, 2025 | Replies (27)Comment receiving replies
@hosers2 Thank you so much for sharing your experience with Simvastatin and also Hydroxychloroquine (HCL). It is extremely valuable. Thinking back, I should giveHydroxychloroquine (HCL) a try when prednisone caused me sleepless and more. Fortunately, I had to cut the dose aggressively to get some sleep which avoided some side effects effect. Of cause the trade of were some pain and stiffness. I have been off prednisone for nine months now. My health condition is improving… May you gain complete recovery asap as well.
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@nm11643 I have actually been pain free and off of HCL for two years now. Rheumatologist actually announced that I am in remission. (Hopefully to never experience PMR again). It took two and a half years.
I have been a member of HealthUnlocked (England and Italy) since 12/2020 which is the equivalent of this Mayo Clinic blog. Over that time span, I was the ONLY person who managed to actually recover from PMR completely. Sadly, it has been totally impossible to convince anyone on that site that PMR can be treated with HCL instead of Prednisone. They just laughed at me when I announced I had to make that change due to the AMD. But one other factor is probably a reason none of the thousands on that site are getting past the 7.5mg prednisone threshold is because they have all been coerced by their health system that, and I quote: “Everyone over the age of 50 should be taking STATINS”.