I had Covid in 2022 and started having heart palpitations and dizziness for short periods of time. I was reinfected a year later and recovered from the infection in about 10 days as I had the first time-and then slowly my life changed. I had spells of severe heart palpitations, spontaneous severe tachycardia and lingering vertigo. I found out after cardiac testing that I developed POTS syndrome. I also had GI sickness every day and struggled to stand long enough to even make myself something to eat. This was all part of the dysautonomia my body was stuck in and damage to the brain gut axis. I now see a neurologist, cardiologist and gastroenterologist who help me along with medication and things to help me.
My symptoms seemed to be improving and then I was infected again last year. My heart thankfully stayed relatively the same with symptoms, but my GI symptoms returned with a vengeance and as a nurse, I know I have exhausted testing, I’m taking a high dose of vitamin D and doing B12 injections etc etc. So the reason I am on this thread is honestly for mental reprieve because I am now reading that long covid worsens after each reinfection. With symptoms I experienced, this seems to be the case. Has anyone noticed long covid symptoms getting worse with each infection? Any advice on how to stay positive? I am unsure how to keep doing my normal routine while being sick, and knowing that a reinfection may make it even worse. I would appreciate any advice or input. To anyone out there who can relate, I would suggest talking to loved ones about how you feel and not keeping it bottled up, reach out for support if you need it because help is always there, and sometimes where you least expect it!