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Digestive Health | Last Active: Feb 21 5:28pm | Replies (459)
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Hi Mindi, his symptoms are really mild. No gastric pain at all. We were only able to reach his diagnosis after a gastroscopy. His symptoms were just anaemia related which is now under control. I'm really hesitant to treat him with all these drugs when he is currently symptom free. My fear is that he may get worse though, if we don't try something. Its a real challenge to know what is the right thing to do.
Replies to "Hi Mindi, his symptoms are really mild. No gastric pain at all. We were only able..."
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Hello motherkat. That is good your son has no pain. Was the anaemia caused then by low level bleeding from stomach wall?
Has the specialist put him on any other medication to try first?
I was initially just on Omeprazole to reduce acid in stomach plus iron to replenish iron stores.
After very large bleeds had to start Budesonide.
If you unsure why not talk to Specialist again or seek a second opinion. Seems though as disease so rare very few gastroenterologists have treated CG. Did your sons gastroenterologist diagnose on first Gastroscopy? If so he/she must have viewed condition before.