Hello motherkat
Sorry to hear bout your son.
His CG condition must be reasonably severe then if Budesonide has been prescribed. From what I can make out from this Forum there does not seem many of us taking Budesonide. Some seem to be taking just a proton pump inhibitor, such as Omeprazole, and maybe Iron supplements .
Of course I can’t be sure as members don’t always provide a lot of detail of the medications they are taking.
My own experience is that Budesonide seems to be helping my stomach and reducing chances of it bleeding.
It does seem to be keeping me more comfortable as prior to Budesonide I would often get stomach pain. I also take Omeprazole so that would be helping.

I have not to date had any problems with Budesonide. However, I certainly worry about the long term implications of taking this medication as it is a type of cortisone. Unfortunately I have no option and have to weigh up benefits of taking it over not taking.
I hope that’s helpful.

Hi motherkat
What sort of symptoms has your son had?
Thanks

Hello, sorry for the late response. I was actually taking Protonix, but stopped about 3 years ago because of long-term side effects. I've found that diet has been the most helpful way of dealing with it. I stay away from high-fat/greasy, high-acidic, and gluten. I have had nearly no pain since changing my diet. I stay away from fast food and even restaurants all together, as I normally get flare-up's after eating there. I hope that helps!