Please don't despair. My daughter is 19 and was diagnosed when she was 12. She has been to some of the best gastroenterologists in the Charlotte, NC area and hey didn't really know what to do either but helped as much as possible. She was in the hospital 4 times for blood transfusions because of severe stomach bleeds. She is in college now and doing well, but on meds to prevent stomach bleeding but is not experiencing pain, thankfully. I've heard others rave over CBD oil for pain. I just started using RSHO Gold Hemp Oil for my own pain and it seems to be helping. It's expensive, but I've heard others says it has a lasting effect even after stopping. Worth experimenting with it. There are other good brands out there as well, but all of it is pricy. I know you hurt for your grandson and hope this forum helps with ideas and encouragement. One thing that helped my daughter was eliminating gluten, dairy, and sugar from her diet. And the things we all should be doing, exercising, enjoying life, fresh air and sunshine, and a community of loving friends and family have had tremendous benefits. If you haven't already done so, check out the Collagenous Gastritis Group Facebook Page: https://www.facebook.com/groups/1516927688436167/permalink/1952087654920166/. It has lots of information, encouragement, and ideas. Grandparents are amazing and your prayers will avail much I'm sure.