Hello! I'm relieved that you got the same diagnosis as me! ( i thought I would be the only one in a long time that would have it )
As I am still a child I haven't had this diagnosis my whole childhood, though I've been diagnosed with it for six years.
I live in Sweden and I have major issues with especially the abdominal system. Early, I was diagnosed with anemia that resulted in depressive episodes in my life and because of that, I was later diagnosed with depression.

When I was about six years old I had my first gastroenterological examination. It was one of the most terrifying experiences in my life.
I had to get anaesthetized before the examination and yes, of course, it was scary.
I needed to get some kind of camera stuffed in my stomach where they found something strange about it.
I had a smooth stomach instead of a wrinkled stomach. It was very difficult for me to understand at that time as I was only six years old, though I remember it as if it was yesterday, I still cannot really describe the feeling.

I have stomach problems all the time and it is not fun to live with. The pain never ends. I have trouble going to the restroom certain periods where I only go once a week or usually two. I get medication for my stomach problems but it usually only helps for a little while.

This is sickly emotional for me especially because I told my friends about it. But when I say that the disease is very unusual, they think I brag about it. For me, this disease is nothing to brag about. This is incredibly horrible to live with and I do not want more people to be affected by this disease.

I am grateful that there is such a group like this.
Please spread this group to those who have the same symptoms. Thank you, stay strong.