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I was just recently diagnosed with 3+3=6. Waiting on genetic testing to come in to help guide my next decision. My doctor is proposing active surveillance, but like you, I am finding it hard to live with. Not to mention, I still have blood in my semen from the biopsy that was 6+weeks ago and I can't imagine having to continue doing biopsy's and having the blood for this long afterwards. Once I get my genetic marker test back, I will meet with my doctor again. I am also planning on meeting with another doctor to get a second opinion. I feel overwhelmed and not sure what to do. I am glad that I found this board.
Replies to "I was just recently diagnosed with 3+3=6. Waiting on genetic testing to come in to help..."
@rybread
Listen to jeff Marchi..you are in very good shape..just get PSA test every 6 months...and relax and enjoy life.
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@rybread
A large number of doctors do not consider a 3+3 cancer.
You could get a second opinion on your biopsy. Here’s info on a couple of highly respected doctors who do it.
Dr. Epstein biopsy
https://advanceduropathology.com
Dr. Zhou
Send an email to Ming.zhou@mountsinai.org to inquire about a second opinion and ask for his specific instructions for the process.
For a few years, they even stopped testing people for PSA because too many people were being treated when they’re only a 3+3. We now have a lot of advanced cases because of that decision back in 2012.
As for active surveillance, here is some information from some doctors, but discuss who should or should not do it. The second video is from the same doctor that does second opinions.
Here is a video with Dr. Laurence Klotz, one of the experts on active surveillance. He can give you answers as to why you would or would not be a good candidate for active surveillance.
Here is a video by Dr. Epstein discussing active surveillance and more