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Collagenous Gastritis

Digestive Health | Last Active: Nov 19 2:11pm | Replies (460)

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@wendyt2018

@clif Thank you so much for your share! I'm so happy to hear that you have been able to get some relief with your change in diet. We've tried dietary changes - 6 food elimination, with no change whatsoever. I'll post what we are doing now under a doctor's care at Mayo up top. (So I only do it once) 🙂 So glad that you do have a diagnosis after so long. Wishing you much relief with your new plan!

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Replies to "@clif Thank you so much for your share! I'm so happy to hear that you have..."

Hello wendyt18.
I read your post Nov 1st. You said in that post your 15 year old daughter was to have appointment with gastroenterologist the following week at Mayo Rochester. Can you please say if medications were suggested/prescribed or if any other treatment eg. diet was suggested at that appointment. Did your daughter see Dr J. Murray or another gastroenterologist there? What advice have you received from them.
I gave outline of treatment prescribed by my gastroenterologist in my 27/10 posting.

I hope your daughter’s symptoms are decreasing in severity.
Budesonide has helped alleviate mine. Unfortunately I have had to weigh up long term side effects of medication vs frequent pain in stomach with gastric bleeds and then transfusions.
Thank you.