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Tymlos blood pressure side effects etc. very nervous! Help…
I wanted to know if anyone has some info on these specific topics.
We are in a small town one Rheumatologist…has connections with Dartmouth, which isn’t bad.
1. 90/60 blood pressure (10-20% drop with Tymlos)
2. Can you start with smaller dosing first few days to start? He says no others say yes. Tymlos company rep says no, but I see others have said they did that.
3. Can you use Ibuprofen to raise low blood pressure?
4. Phenegran or Zofran for Nausea? What other meds since these can low BP also.
5. Calcium Vitamin supplement schedule?
6. How soon should a Blood test follow up be?
Any other experience with Tymlos would be helpful…supposed to start Thursday
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@beachesanddreams
I really believe that some doctors have experience with Tymlos and some don’t. This forum has been invaluable resource. There’s tons of knowledge here with experience,. By starting with a low dosage and moving up, has been fine. So know that it works and do what’s best for you. It kind of makes sense. Start slowly increasing to the proper dosage. My endocrinologist was totally on board with starting at 20. What I didn’t expect that I was going do 20 than 40 then 60 to 80. But it worked out.
Most important to listen to your body. The drug is mimicking the parathyroid in creating bone.
I definitely get discomfort from the medicine.
My shins used to burn. Also, my lower limbs have some muscle weakness. When I first started, it affected my knees badly. The other thing I do differently. Is, I put the pen in the refrigerator every morning till I get ready for the evening injection, in bed. The following morning, I put it back in the refrigerator. I do this , because, I was traveling around in a camper van and the environment was pretty warm. Even in the summer, room temperature is higher than what is recommended for the pen. So I put in the refrigerator daily. I think I read somewhere in one of these forms that somebody else did the same. In fact, I believe it was their Doctor who recommended doing so.
Good luck, lots of great experience in this group. I wish we heard more of the good news/good experience, but it is what it is.
Good luck!!
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3 Reactions@vixstermoves To be sure, most drugs have side effects that we can’t escape from.
Lately, I am constantly reminded of 22 years ago, when I underwent chemotherapy for breast cancer (hence the osteoporosis today). On my very first visit, a wonderful nurse named Pat sat with me and gave me a piece of paper with a list of every possible side effect, and a corresponding list of OTC medications that would alleviate them.
I had never even heard of Biotene mouthwash at the time, but you best believe I had a little bottle of it in my purse whenever I went out to eat!
Her kindness allowed me to get through chemo. It wasn’t always smooth sailing, but I swear to you, I was only sick one time in five months. Every side effect was addressed and dealt with.
Drug companies have an obligation to do this today, i believe. If you’re going to tell us the negative ways this drug might affect us, give us some solutions. It’s comfort, and the decent thing to do.
God knows they have the money to do it.
Excellent advice on refrigerating the pen. Noted. 👍🏻
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5 Reactions@osteopatient2026
Hi, I was supposed to star a month ago and I haven’t been able to bring myself to do it because of anxiety, technically, I am paralyzed by fear, I know this is what I should do but I am so scare! Thank you for letting me vent…
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