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Collagenous Gastritis

Digestive Health | Last Active: Feb 21 5:28pm | Replies (459)

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@mommyof6

its been while since my last post. We have seen several gi doctors but my daughter has yet to find relief in anything. She was on budesonide, but took herself off of it because it was making her sicker. She still has low iron (anemia) even after 3 sets of iron infusions, usually 5 every 2 weeks, then is good for about 3 months before we are back. She went gluten free and it doesn't seem to have changed the way she feels. Everything makes her sick or puts her in the bathroom a few minutes later. She pretty much given up hope and just wants to continue as long as she can hopefully without stomach bleeds. But me being the curious mom that I am, what are the odds of her ever getting pregnant? Cause I know that was one of her dreams to become a mom, but is it possible of she gives up on treatments? Or could it be possible if she follows treatments? Any info would be greatly appreciated.

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Replies to "its been while since my last post. We have seen several gi doctors but my daughter..."

My heart just goes out to you! It is brutal watching our children go through so much pain- with so many unknowns. How old is your daughter? How long has it been since she was diagnosed?