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I have a 24 year old who has been diagnosed a few years ago with Collagenous Gastritis. We have been to several doctors and he has had two colonoscopy procedures along with a number of lab work performed with the same year. Our medical out of pocket expenses are racking up to thousands of dollars. We can not find a doctor who can help him. His condition continues to deteriate.
Replies to "I have a 24 year old who has been diagnosed a few years ago with Collagenous..."
I have a 17 year old that was diagnosed over two years ago. We also went to several doctors. There is no one protocol that works. The only thing we are having success with is nutrition. My son is on the GAPS diet. It is similar to SCD which some Mayo Clinic doctors recommend for Crohn's patients. GAPS is like second generation SCD. It is very slow healing and our practitioner says it will take about two years. Feel free to reach out privately.
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Hello @rose715 and welcome to Mayo Connect.
I appreciate your posting about your 24 year old who has been diagnosed with CG. I can imagine your concern as well as his.
As you read through the other posts about CG in this discussion group you will see many parents who are discussing this disorder.
On October 23, I posted a video discussion by a doctor at Mayo regarding this rare disorder. I would encourage you to look at it for more information.
What type of symptoms does he have currently? Is he able to maintain his weight? As you may know, Mayo has facilities in Minnesota, Florida as well as Arizona. Is there any possibility that he could be seen by a doctor at Mayo?