← Return to Tymlos blood pressure side effects etc. very nervous! Help…

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Profile picture for beachesanddreams @beachesanddreams

@vixstermoves Amazing! 🙌🏻 Well done! Thank you for your reply. I’m finding that anecdotally, women who titrate UP (as opposed to starting at the full dose and titrate down when they experience uncomfortable side effects), seem to get to the full dose comfortably, stay on Tymlos LONGER (which is the goal), and have those positive gains.

In the same vein, many also see positive gains in under the 2 years it’s recommended.

One rheumatologist told me to start low.

Another said absolutely not. This is the doctor I prefer to go with, because her practice isn’t nearly as chaotic as the first guy, but I honestly feel I might do best starting low and slow.

Again, many thanks. If you’ve any other tips to share, please do.

Your wonderful gains are something to be thankful for, and I am really happy for you.

My best~

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Replies to "@vixstermoves Amazing! 🙌🏻 Well done! Thank you for your reply. I’m finding that anecdotally, women who..."

@beachesanddreams
I really believe that some doctors have experience with Tymlos and some don’t. This forum has been invaluable resource. There’s tons of knowledge here with experience,. By starting with a low dosage and moving up, has been fine. So know that it works and do what’s best for you. It kind of makes sense. Start slowly increasing to the proper dosage. My endocrinologist was totally on board with starting at 20. What I didn’t expect that I was going do 20 than 40 then 60 to 80. But it worked out.
Most important to listen to your body. The drug is mimicking the parathyroid in creating bone.
I definitely get discomfort from the medicine.
My shins used to burn. Also, my lower limbs have some muscle weakness. When I first started, it affected my knees badly. The other thing I do differently. Is, I put the pen in the refrigerator every morning till I get ready for the evening injection, in bed. The following morning, I put it back in the refrigerator. I do this , because, I was traveling around in a camper van and the environment was pretty warm. Even in the summer, room temperature is higher than what is recommended for the pen. So I put in the refrigerator daily. I think I read somewhere in one of these forms that somebody else did the same. In fact, I believe it was their Doctor who recommended doing so.
Good luck, lots of great experience in this group. I wish we heard more of the good news/good experience, but it is what it is.
Good luck!!