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Hi all,
Just after some advice, I have had childhood absences since I was 3, I am now 19 and still have them. Over the last few years they have become much less and much quicker, with them being no longer than 1-2 seconds. I have had in the past a few tonic clonic seizures, my most recent was in June.
I really really want to drive and seeing all my friends drive makes me a bit annoyed as it’s something I want to do. I was on Euthsauxamide and now on Lamotrigine , and on average getting 3-5 a day and generally seem to be in the morning.
Is there anyone that found out if a different lifestyle has helped and what have you done? I’ve been looking into the keto diet but not sure how effective it is? I’m nearly at the max on the Lamotrigine.
Thanks
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Hi @ambo2006
Welcome to the group, and thank you for sharing your story with us.
In terms of lifestyle changes, what's helped me most has been learning to identify and monitor my seizure triggers using the Andrews-Reiter Approach. If you're interested in exploring this, I highly recommend this workbook:
- Taking Control of Your Seizures
https://www.amazon.com.br/Taking-Control-Your-Seizures-Workbook/dp/019933501X/ref=sr_1_5
Here are also a couple more resources on the Andrews-Reiter Approach:
Stopping Seizures Before They Occur: The Andrews-Reiter Approach and Beyond
Andrews-Reiter Website
https://www.andrewsreiter.com/
Regarding the ketogenic diet - I know someone with a rare form of epilepsy who's had great success with it, though I haven't tried it myself. It definitely requires close medical supervision to implement safely and effectively.
Here's a great resource to learn more:
The Charlie Foundation
This nonprofit provides comprehensive information about ketogenic diet therapies for epilepsy
https://charliefoundation.org/.
Have you had a chance to discuss the keto diet with your neurologist yet? He or she can help you determine if it might be a good fit for your specific situation.
Chris
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