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When to start taper

Polymyalgia Rheumatica (PMR) | Last Active: Nov 29, 2025 | Replies (14)

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Profile picture for petermccarville @petermccarville

I found the article below helpful. Most of the protocols are variations on the conference held in 2015 (international) to establish treatment and diagnostic protocols.
https://pubmed.ncbi.nlm.nih.gov/26359488/
https://www.ncbi.nlm.nih.gov/books/NBK537274/
Welcome to the club! This disease is beatable. Tapering speed and amount is highly individual. But, tapering too quickly is dangerous and invites flairs and adrenal insufficiency issues. It is a marathon, not a sprint.

I always wondered what a flair or "too much" pain was. I was informed, via this forum, that a flare is any pain that is intense enough to think it has come back and that pain has not abated after a week or so, and seems to be getting worse.

Some pain and stiffness in the AM is normal and some pain for a day or two after tapering is normal but you have to be the judge of this. Complete freedom from pain during the process is rare. The best freedom from pain I had was being on 15 mg for the first month. I literally have never felt that good in my entire life. I could do anything without pain or stiffness during and after the activity. That was a delusion and not reality. Reality is that some pain of all sorts comes into life on a daily basis.
Good luck.

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Replies to "I found the article below helpful. Most of the protocols are variations on the conference held..."

@petermccarville Excellent information -- thanks.