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Profile picture for Miriam, Volunteer Mentor @mir123

@tatiana987 I know you went through a difficult situation, and I'm sorry that even if it resolved practically there is mistrust and erosion of confidence. I hope that as time passes this might improve. Wishing you all the best.

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Replies to "@tatiana987 I know you went through a difficult situation, and I'm sorry that even if it..."

@mir123 Thanks. I think a healthy suspicion of medical advice is a good idea. I have not found a doctor that I totally trust. In the medical system here, doctors don’t know me, my history, my language differences.

Before deciding to detox from Repatha, I read all my medical notes and history. That is a good idea. There is a lot to learn and there was far more error than fact.

One doctor phoned me, but did not leave a message, he said, because my phone message was not in English, he thought it was not me. I was shocked at how little he knew about me and yet I should trust his advice to take certain meds? Maybe, I say. Distrust is wise.

@mir123

I think part of the misunderstanding is caused by the varying state laws which regulate driving. I have epilepsy myself and some states (like mine) have a self-report system where it’s the patient’s job to report a seizure and quit driving immediately ( and seek treatment and do some other things). But other states make it the physician’s duty to report any patient who may be having a seizure, under penalty of loss of his/her medical license. My state adopted the self report system because it believed that patients would be more apt to seek medical treatment and get help if they didn’t have to worry about their doctors reporting them.