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Hello @nm18, and welcome. I'm sorry to hear about your daughter, and so glad you've joined this group. I would sincerely encourage you to take a look at these videos on the Gastroenterology and GI Surgery Page on Connect:
– The Strange World of Non-Celiac Gluten Sensitivity https://connect.mayoclinic.org/newsfeed-post/the-strange-world-of-non-celiac-gluten-sensitivity-1/
– The Gluten-Free Diet: A Practical Look https://connect.mayoclinic.org/newsfeed-post/the-gluten-free-diet-a-practical-look-1/
I'm tagging @jng123 @guaranlam @bakingchick @mommyof6 @epvb @theresap @looloo @tlcollazo1230, who have all shared what works/what doesn’t with regard to various diets.
@nm18, has your daughter just started a gluten-free diet? May I ask if you could share more about how she managed her symptoms so far?
Replies to "Hello @nm18, and welcome. I'm sorry to hear about your daughter, and so glad you've joined..."
How long have people been on the gluten free diet before they noticed a change in symptoms?
I eliminated spicy foods, acidic foods and fried foods several years ago and continue to do so more for heartburn than stomach ache issues. I tried a gluten free diet for 6 weeks but found there was no change in my symptoms. I find that I can eat a particular food several times with no problem, but that same food can cause severe stomach aches and pressure along my digestive tract the next time I eat it. There is no consistency with food and symptoms.
@epvb and @kellye5 Did you read my post 22/5? It know it can be easy to miss a Reply. It was about the leg aches experienced and if you have ever tried Magnesium.
Most people with conditions like ours need magnesium. We use CALM and add to smoothies.
himy dagther hav C G she is 9 year.she only take omperazol .she always have pain.There is someone who can help me.
tank Maria
Maria, there is a facebook group now. Collagenous Gastritis Discussion Group. Very helpful.
@elsanio Hello Maria:
I'm glad you posted on Connect. I see that you are a new Member, welcome! I am a volunteer mentor on Connect and I was wondering how your daughter's CG was diagnosed?
I found a Youtube video made by a specialist at Mayo Clinic about this disorder. You might find it interesting. Here is the link, https://www.youtube.com/watch?v=XY-0Fsv20sw
I appreciate your sharing your daughter's story and I look forward to hearing from you again.
Teresa
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Wow! I like this group already. Thank you for the quick reply I feel like for I had no one to discuss this with for all these years that understood what she is going through. She just started the new diet a few days ago. She experiences stomach pain and lethargy on a daily basis. She does not watch her diet at all and I am convinced this could exacerbate symptoms. She loves very spicy foods and puts red pepper or hot sauce on everything. I am trying to have her limit that while she goes gluten free because I am convinced that hot foods spicy cause more pain as well.