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Hello @nm18, and welcome. I'm sorry to hear about your daughter, and so glad you've joined this group. I would sincerely encourage you to take a look at these videos on the Gastroenterology and GI Surgery Page on Connect:
– The Strange World of Non-Celiac Gluten Sensitivity https://connect.mayoclinic.org/newsfeed-post/the-strange-world-of-non-celiac-gluten-sensitivity-1/
– The Gluten-Free Diet: A Practical Look https://connect.mayoclinic.org/newsfeed-post/the-gluten-free-diet-a-practical-look-1/
I'm tagging @jng123 @guaranlam @bakingchick @mommyof6 @epvb @theresap @looloo @tlcollazo1230, who have all shared what works/what doesn’t with regard to various diets.
@nm18, has your daughter just started a gluten-free diet? May I ask if you could share more about how she managed her symptoms so far?
Replies to "Hello @nm18, and welcome. I'm sorry to hear about your daughter, and so glad you've joined..."
How long have people been on the gluten free diet before they noticed a change in symptoms?
I eliminated spicy foods, acidic foods and fried foods several years ago and continue to do so more for heartburn than stomach ache issues. I tried a gluten free diet for 6 weeks but found there was no change in my symptoms. I find that I can eat a particular food several times with no problem, but that same food can cause severe stomach aches and pressure along my digestive tract the next time I eat it. There is no consistency with food and symptoms.
Most people with conditions like ours need magnesium. We use CALM and add to smoothies.
himy dagther hav C G she is 9 year.she only take omperazol .she always have pain.There is someone who can help me.
tank Maria
Maria, there is a facebook group now. Collagenous Gastritis Discussion Group. Very helpful.
@elsanio Hello Maria:
I'm glad you posted on Connect. I see that you are a new Member, welcome! I am a volunteer mentor on Connect and I was wondering how your daughter's CG was diagnosed?
I found a Youtube video made by a specialist at Mayo Clinic about this disorder. You might find it interesting. Here is the link, https://www.youtube.com/watch?v=XY-0Fsv20sw
I appreciate your sharing your daughter's story and I look forward to hearing from you again.
Teresa
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Wow! I like this group already. Thank you for the quick reply I feel like for I had no one to discuss this with for all these years that understood what she is going through. She just started the new diet a few days ago. She experiences stomach pain and lethargy on a daily basis. She does not watch her diet at all and I am convinced this could exacerbate symptoms. She loves very spicy foods and puts red pepper or hot sauce on everything. I am trying to have her limit that while she goes gluten free because I am convinced that hot foods spicy cause more pain as well.